Head of Transformation NEW

Young Epilepsy

Job Title: Head of Transformation

Department: Fundraising and Development

Reports to: Director of Fundraising and Development

Direct reports: None

Location: Lingfield, Surrey

Salary: £65,000 per annum

Hours: 37 hours per week, Monday to Friday

Contract: Permanent

Closing Date: 13th February 2026

Young Epilepsy is committed to safeguarding and protecting all children and young people who access sour services.

As part of our safer recruitment process, online searches will form part of this process.

An Enhanced Disclosure with relevant Barring Service checks and full referencing will be required before employment can commence.

Your Role

Young Epilepsy is on a bold journey to become a truly technology-enabled charity, harnessing digital innovation to transform the way we work, the services we offer, and the way we engage with supporters, partners, and young people. This role will be at the heart of shaping that future.

As Head of Transformation, you will lead and deliver our five-year transformation strategy, turning ambitious plans into tangible results. You ll be a senior change leader who can bridge strategy and execution, ensuring that digital adoption, innovation, and cultural change are embedded across the organisation.

You ll work closely with our Strategy Steering Group and collaborate across Fundraising, Voice & Support, Research, Marketing, and Operations to ensure every part of Young Epilepsy benefits from a more connected, data-driven, and future-ready approach.

This is a rare chance to make a measurable difference to the lives of young people, while building the digital capabilities of a growing UK charity.

We re looking for someone with a proven track record of delivering strategic programmes, demonstrating expertise in transformation management and cultural change. The ideal candidate will be a visionary, with exceptional collaboration and communication skills.

What we need from you

You are an inspiring, strategic leader who combines vision with delivery. You have a track record of leading transformation programmes that deliver real, measurable change, ideally within a charity, public sector, or mission-driven organisation. In the role you will:

• Lead and deliver the overall 5-year transformation strategy ensuring programmes are on time, on budget, and deliver measurable impact.

• Turn vision into action translating strategic goals into practical, deliverable projects that improve reach, efficiency, and outcomes.

• Champion a digital-first culture embedding technology, data, and AI into service delivery, supporter engagement, and operational processes.
• Analyse current business processes to identify opportunities for automation, simplification and improved impact
• Develop plans to implement and drive organisational change, including adoption of digital and the use of AI
• Collaborate with programme managers and cross-functional teams to ensure projects align with strategic objectives, resources are used efficiently, and capacity is maximised

• Develop a monitoring and evaluation framework, to track progress, measure success and inform continuous improvement.

• Lead change management, supporting teams through transformation and building internal capability for innovation.
• Identify and mitigate risks and obstacles that may impede the success of the strategy

Your benefits

• Comprehensive training and professional development opportunities
• Generous annual leave
• Occupational pension scheme
• Subsidised dining room
• Your Rewards, giving you access to nationwide discounts and benefits
• Free parking on site
• We are accessible by bus, by train via the East Grinstead branch of the Oxted Line and by car

About us

Epilepsy can be one of the most frightening and isolating conditions a child can experience. The loss of any sense of safety, trapped in an unpredictable world, not knowing when their next seizure will happen, where it will happen, who will be there and if they will be hurt.

Living in this unpredictable world takes its toll on a child s physical and mental health, as well as impacting their education and social life. It can limit opportunities for the rest of their life.

Children with epilepsy have a right to be heard. We are here for them.

Together we can create a society where children and young people with epilepsy have a voice and can live happy, fulfilled lives. Through research that improves diagnosis and treatments, campaigning for children s rights, and providing innovative tools, information, and practical support for living day-to-day life.

No agencies please

Young Epilepsy strives to employ people that reflect the community it serves; therefore, applications from minority groups and people with disabilities are particularly welcomed.
Young Epilepsy is the operating name of the National Centre for Young People with Epilepsy. Registered Charity No: 311877 (England and Wales).

If you do not hear anything within two weeks of the closing date, please assume you have been unsuccessful. We reserve the right to close the job advert earlier than publicised should we receive a high volume of interest.

Young Epilepsy is the operating name of the National Centre for Young People with Epilepsy. Registered Charity No: 311877 (England and Wales).